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The RWE Series

Research + Expert Discussion

The RWE Blindspot

Virtual Event 1 of 2

  • June 16, 2026
  • 2:00 PM ET
  • Webinar + Q&A

You'll benefit most if you are:

This event is designed for pharma and biotech professionals working in RWE, medical affairs, insights and analytics, patient engagement, and clinical development, particularly those focused on rare disease or specialty therapeutics. It is also relevant for health data companies, patient advocacy organizations, and research teams exploring community-sourced evidence methodologies.

Event Summary

Real-world evidence has transformed how pharma teams evaluate treatments, design trials, and build engagement strategies. Claims data, EHRs, and PROs have become essential to pharma decision-making.

But they tell us what happened, not what it feels like. A deeper, continuous look at the patient experience is what moves us from clinical observation to a real understanding of disease impact.

The richest signal about treatment decisions, the conversations patients have before and after appointments, how they weigh side effects against quality of life, where trust forms and where it breaks, lives inside patient communities. Across 50+ rare disease conditions, Bionews sees these patterns daily. This event presents what that data reveals and what it means for pharma teams building evidence strategies.

Panelists

Moderator
Marcella Debbida, PhD
Marcella Debbida, PhD
President, Patient Insights & Clinical Solutions
Amy Price MS, MA, MS, DPhil
Amy Price MS, MA, MS, DPhil
Editor in Chief
Journal of Participatory Medicine
Moshe Vardi, MD
Moshe Vardi, MD
Vice President, R&D Global Head of Clinical Development
Lindsey Wahlstrom
Lindsey Wahlstrom
Co-founder & Chief Momatologist
Rona's Fun Lab