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Unlock Actionable Insights from BioNews’ 2024 Rare Disease Survey

Gain exclusive access to practical insights tailored for pharma and advertising media agency leaders with BioNews’ 2024 Rare Disease Survey. With over 5,000 respondents, our survey offers valuable data on diagnosis, treatment experiences, and patient support.

Unmatched Reach

5,000+

Rare Disease Patient Survey Respondents

Representing

30+

Rare Disease Communities

UNLOCK RARE INSIGHTS

Sign up now to be the first to receive the results and leverage 2024 BioNews insights to drive impactful marketing strategies in the rare disease space.

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We Deliver: Unmatched Reach, Patient-Centric Solutions, and Impactful Partnerships

Popular Communities

NEUROLOGY

  • ALS
  • Alzheimer’s Disease
  • Angelman Syndrome
  • Batten Disease
  • Cerebral Palsy
  • Charcot-Marie-Tooth
  • Dravet Syndrome
  • Familial Amyloid Polyneuropathy
  • Fragile X
  • Friedreich’s Ataxia
  • Huntington’s
  • Multiple Sclerosis
  • Neuromyelitis Optica Spectrum

HEMATOLOGY

  • Atypical Hemolytic Uremic Syndrome
  • Hemophilia
  • Paroxysmal Nocturnal Hemoglobinuria
  • Sickle Cell Disease

IMMUNOLOGY &
RHEUMATOLOGY

  • ANCA vasculitis
  • Angioedema
  • Ankylosing Spondylitis
  • Cold Agglutinin
  • Ehlers-Danios
  • Epidermolysis Bullosa
  • Juvenile Arthritis
  • Lambert Eaton
  • Lupus
  • Myasthenia Gravis
  • Scleroderma
  • Sjogren’s Syndrome

ENDOCRINOLOGY
& METABOLIC

  • Aromatic L-amino acid decarboxylase
  • Cushing’s Disease
  • Gaucher Disease
  • Genetic Obesity
  • Hypoparathyroidism
  • Mitochondrial Disease
  • Phenylketonuria
  • Pompe Disease
  • Porphyria
  • XLH

Experience our commitment to delivering real-world impact for the rare disease and chronic condition community, and our partners. Connect with us at [email protected] to start a conversation today!

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