UPDATED. NOVEMBER 12th 2021
BioNews Services (“BioNews Services,” “us,” “our,” or “we”) is a digital healthcare services firm focused on providing our patient communities with content, patient engagement, clinical trial services, and market research services regarding certain chronic and rare diseases. Through our rare disease specific news services, which include websites, we provide patients, caregivers, physicians, and industry professionals access to comprehensive, disease-specific content coverage.
- Types and Uses of Collected Information.
We collect or obtain information directly from you and we may receive information about you from third parties.
- a) Types of information we may collect:
We may collect the following types of personal information about you: Personally Identifiable Information (“PII”) (such as your first and last name, your mailing address and other contact details, your age, birth date, gender, etc.) and Non-Personally Identifiable information, which is information that does not identify you as a specific person (such as the Uniform Resource Locator -“URL”- of the website you visited before coming to the BioNews Services website, the type of browser you are using, etc.). Additionally, we might take your PII and transform into Non-Personally Identifiable information.
- b) Use of collected information:
We may process your information, for the following purposes: (a) providing services to you; (b) communicating with you; (c) providing advertising to you on our websites or in connection with our services; (d) analyzing engagement with our visitors and audience; (e) observing user engagement and purchase activity across our websites and services; (f) offering lead generation services; (g) marketing our websites, services, and offerings to current and prospective users and customers; (h) managing our information technology systems; (i) financial management; (j) conducting surveys; (k) ensuring the security of our systems; (l) conducting investigations, if necessary; (m) complying with applicable laws and regulations; (n) improving our websites and services; (o) creating information about use, including records of your interactions with us; (p) providing products and services to you; (q) aggregating information for promotional and publication use; (r) collecting information and providing you information about relevant clinical trials; (s) providing products and services through “Third Party Service Providers” who might perform functions on our or your behalf and provide information to individuals and companies with which we have business relationships or contracts. The use of your information by such third parties is governed by their privacy policies and terms and conditions.
- c) Consent to Provide Your Personal Identifiable Information to BioNews Services:
We require and you provide your explicit consent to collect your information PII when you inquire about clinical trials, provide PII to us, or when we conduct a survey that has PII type questions
- d) Way in which we contact you:
Using the contact details that you have provide to us, in compliance with applicable laws and regulations, we may contact you directly via email, telephone, direct mail, or other methods of communication.
- e) Control of your information:
First and foremost, providing your information to us is completely voluntary. You can always choose not to provide certain information, although as explained above, a certain level of information may be needed to engage and participate in some BioNews Services services. If for any reason you should change your mind, you may unsubscribe from any subscriber lists, emails, or other communications at any time at no charge, by emailing us at [email protected]or by hitting the “unsubscribe” button at the bottom of any of our emails, in which case we will complete your email opt-out requests in a timely manner, but you may still receive communications from us for a short period of time while we process your request.
- Data Tracking
- b) Other Tracking Devices. We may use other industry standard technologies like pixel tags, web beacons, and other technology that may be available to track your use of the website, or we may allow our Third-Party Service Providers to use these devices on our behalf. If you do not want the services that tracking technologies provide, you may be able to opt-out by visiting http://www.aboutads.info.
- c) Third Parties’ websites or services that may be accessible through our website may have their own privacy policies and data collection, for which we are not responsible.
4. Browser Cookies: A browser cookie is a client-side, multi-byte file which communicates a small amount of information to a web server. This includes BioNews Services servers or third parties authorized to collect data on our behalf. This allows BioNews Services to recognize your personal device. Cookies can be associated with PII, inasmuch as they permit automatic recognition capabilities on restricted areas of our website or identify repeat traffic channels. A cookie will not otherwise contain PII. At your own discretion, you may modify the settings in your Internet browser on your device to no longer accept some or all cookies. You may also choose to be alerted if a new cookie is being added to your browser. Refusing or disabling browser cookies may prevent your use of certain parts of a BioNews Services website, and you will be required to login to access certain parts of this website. You can learn more about how cookies function by visiting https://www.whatismybrowser.com/guides/how-to-enable-cookies/
Beacons: Similar in function to cookies, a web beacon, pixel tag or clear GIF is a server-side, multi-byte graphics file that sends a flag to the server when it is visible on your screen. These flags can be aggregated for website statistics by BioNews Services, and are helpful for us in cultivating content centered your engagement and interest. These web beacons can also be disabled in your browser settings or by third-party tools and browser extensions.
We may collect the following types of personal information about you:
Personally Identifiable Information (“PII”) (such as your first and last name, your mailing address and other contact details, your age, birth date, gender, etc.)
Non-Personally Identifiable information, which is information that does not identify you as a specific person (such as the Uniform Resource Locator -“URL”- of the website you visited before coming to the BioNews Services website, the type of browser you are using, etc.)
Additionally, we might take your PII and transform into Non-Personally Identifiable information.
Listed below are the first-party cookies we use, when the cookie is placed, the information it collects, how we use this information and which third parties have access to the information collected by the cookie:
|cookieFriend||A new visit to the website||Your referring URL||Counting traffic sources||Google Analytics, Qualtrics|
|Lazy-load||Visiting a second webpage||That you visited a second webpage||Implementing “lazy load” on our advertisements||No third parties|
Listed below are the third parties who place cookies on your browser through our website or place web beacons on our website, what information they collect, and if parties outside of this entity and BioNews Services use the information.
|Google Ad Manager||non-PII||Yes|
|Mailchimp||PII, non-PII||Yes (only non-PII)|
|Matomo||PII, non-PII||Yes (only non-PII)|
We may process your information collected by first- or third-party sources for the following purposes:
(a) providing services to you;
(b) communicating with you;
(c) providing advertising to you on our websites or in connection with our services;
(d) analyzing engagement with our visitors and audience;
(e) observing user engagement and purchase activity across our websites and services;
(f) offering lead generation services;
(g) marketing our websites, services, and offerings to current and prospective users and customers;
(h) managing our information technology systems;
(i) financial management;
(j) conducting surveys;
(k) ensuring the security of our systems;
(l) conducting investigations, if necessary;
(m) complying with applicable laws and regulations;
(n) improving our websites and services;
(o) creating information about use, including records of your interactions with us;
(p) providing products and services to you;
(q) aggregating information for promotional and publication use;
(r) collecting information and providing you information about relevant clinical trials;
(s) providing products and services through “Third Party Service Providers” who might perform functions on our or your behalf and provide information to individuals and companies with which we have business relationships or contracts.
Only non-PII is shared with third parties. The use of your information by such third parties is governed by our privacy policies and terms and conditions.
Social Media: Websites under BioNews Services may contain links to a variety of social media platforms, and likewise may manage social media accounts which link to a particular website. By your own discretion, you may engage with our content and connect to our social media accounts on platforms such as Facebook or Twitter. In so doing, you consent to our ability to collect additional information from you, which may include self-described demographic information, contact details, and user generated content through these platforms. By using these platforms, you consent to such information being collected from you by the platform, and BioNews Services has no authority over the collection of this data by the social media platform, nor their discretionary use or sharing of such data. We advise you to review each website’s particular terms of service to learn more about what information may be collected by each platform. BioNews Services may connect to your social media account on one of our websites if you are logged into the website in your browser by way of social media plugins. This is if and only if you click on a clearly indicated social media function on our website, such as a “Like” button or a “Retweet” button.
Understanding Your Online Rights
- Other Information
- b) Disclosures Required by Law:
- c) Referrals:
- d) Public Areas. We may provide areas on the BioNews Services website where you can publicly post information about yourself or can communicate with others such as on forums. This information may be accessible by other users and companies and may appear on other websites or web searches, and therefore this information could be read, collected, and used by others. We have no control over who reads your postings or what other users may do with the information you voluntarily post, so please use caution when posting any content or providing anything that could be deemed personal information.
- e) Notice of Privacy Rights to California Residents:
If you are a California resident, California law may provide you with additional rights regarding use of your personal information, including the California Consumer Privacy Act of 2018 (“CCPA”), California Online Privacy Protection Act (“CalOPPA”), California Business and Professions Code, and California “Shine the Light” Law. At your request, we will inform you of: (1) the categories of PII we collect and the third parties with whom we share that information; (2) the names and addresses of those third parties; and (3) examples of the products marketed by those companies. You may notify us of parties to whom you do not want us to share that information. To obtain this information, please send a request by email or physical mail to the address found below. When contacting us, please indicate your name, address, email address, and what PII you do not want us to share with our marketing partners. The request should be sent to the attention of our legal department, and labeled “California Customer Choice Notice.” Please allow 30 days for a response. Also, please note that there is no charge for controlling the sharing of your PII or requesting this notice.
- f) Notice to Nevada Residents:
Nevada residents who wish to exercise sale opt-out rights under Nevada Revised Statutes Chapter 603A may submit a request to us at [email protected]
- g) Children Under Age 18:
The BioNews Services websites are not intended for children under 18 years of age. We do not knowingly collect personal information of children under age 18 without prior approval of a parent or guardian. If we learn that we have collected or received personal information from a child under age 18 without verification of parental or guardian consent, we will plan to delete that information. If you believe that we might have any information from or about a child under the age of 18, please contact usat [email protected]
California residents under 18 years of age may have additional rights regarding the collection and use of their personal information. Please see Notice of Privacy rights to California Residents for more information.
- h) BioNews Services Terms and Conditions:
- i) Customer Service: