50+ engaged rare communities
Every day, we connect with over 50 communities, delivering meaningful, relevant content. Our content is as unique and rare as the conditions it addresses, and it includes authoritative perspectives from real patients, carefully sourced and cited resource pages, and articles written by veteran journalists and PhDs.
Our disease-specific websites help create communities that have become indispensable to many of the rare diseases we cover, filling the information gaps that exist online.
These connections have allowed us to gain deep insights into the rare patient journey. That knowledge provides opportunities to develop high quality experiences that resonate with patient communities and drive results for advertising partners.
Desiree Lama
MS Patient, Social Media Collaborator and Columnist
Kevin Schaefer
SMA Patient and Associate Director of Community Content
Explore some of our online health communities
“Our content is more than information; it’s a lifeline for those navigating rare and chronic diseases.”
Jenn Powell
Living with Secondary Progressive MS, Brand & Marketing Manager at Bionews
Jenn’s story
Living with a progressive and incurable disease is a lesson in accepting the unacceptable.
Dagmar’s Story
The complicated answer to “Have you ever participated in clinical trials?”
Kevin’s Story
Expanding clinical trial access for adults with SMA
Brad’s Story
Clinical trials for the rarest: worth the head-scratching
Michael’s Story
A chat with Michael Morale, SMA advocate
Charlene’s Story
Reflections on the five-year anniversary of when I first heard the words “idiopathic pulmonary fibrosis”