Connecting and engaging

rare disease patient communities

Bionews is a digital health solutions company that empowers 50+ rare disease communities with trusted information, news, and connections, fostering a space where hope thrives.

Fueled by our deep understanding, we elevate patient and caregiver voices, driving meaningful engagement for both patients and partners.

Through these connections, we have redefined rare patient engagement.

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Claire Richmond
Porphyria Patient and Columnist

Michael Morale
SMA Patient and Sr. Marketing Analytics Manager

For rare,
by rare

More than 50% of our Bionews team are living with or caring for someone with a rare condition.

This unique perspective adds a layer of authenticity, granting us unparalleled credibility and impact by delivering trusted information and fostering stronger advocacy.

In turn, this provides us with invaluable insights that shape our work and partnerships every day, resulting in industry leading performance.

The patient voice advantage

We believe that the patient’s voice should  be at the center of the rare conversation.

In Their Own Words:

  • We’ll let you know what the communities really want and how they want it.
  • We separate the company from its competitors, and we’re proud of it.
  • We’ll advise on community sensitivity in language and branding.
  • We’ll ignite your purpose.
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Brad Dell
Cystic Fibrosis Patient and Director of Community Content

We know rare. Because we are rare.

Being disabled does not make me any less human.

    Laura Govendo

    Columnist, Cystic Fibrosis News Today

      I can’t put on my necklace because I have limited use of my arms.

    DeAnn

    Community Manager, SMA News Today

      Mommy, can I lick the chip?

    Cayden, 5 years old

    Son of Keara Engle, Columnist. Cayden is living with Pompe Disease and is not able to eat solid food

    Some of the communities we serve


    Being part of the Bionews community has given me the opportunity to spread pulmonary hypertension (PH) awareness beyond my friends and family. Since receiving a heart and double lung transplant six years ago, my son no longer has PH, but we will never get over the experience. It does my heart good to know that sharing his story through my columns and PH forums might help others feel less alone.

    COLLEEN STEELE
    Caregiver – Pulmonary Hypertension


    Being able to work gives a purpose. It’s more than a job, it’s invigorating to your soul. So often, those of us with disabilities are not hired because we are faced with the assumption that we can’t do it, but that’s wrong. Being able to work is another way to be a part of a community that you feel you can benefit and benefit from in return.

    JENN POWELL
    Brand & Marketing Manager


    Bionews gave me my purpose back. I never thought that I would work again. The team here makes me a better person each day, I learn so much from each of them. Inclusion in the workplace should look like Bionews! Here we all matter despite our disabilities. The empathy and caring nature here is all-inclusive.

    JEN CUEVA
    Outreach Coordinator


    The people at Bionews inspire me on a daily basis. We connect with each other through our shared triumphs and trials, humor, and our commitment to amplifying the voices of people from rare disease communities across the world. An inclusive workplace should be an atmosphere of positivity and acceptance, where no employee is discriminated on the basis of disability, gender, sexual orientation, race, etc. Inclusive employers are accommodating, insightful, open-minded, and creative.

    KEVIN SCHAEFER
    Associate Director of Community Content 

    Join our team

    Working at Bionews isn’t just a job — it’s a chance to apply your skills to literally changing people’s lives. If that’s the kind of rare opportunity you’re looking for, we’d love to hear from you.