Connecting and engaging
rare disease patient communities
Bionews is a digital health solutions company that empowers 50+ rare disease communities with trusted information, news, and connections, fostering a space where hope thrives.
Fueled by our deep understanding, we elevate patient and caregiver voices, driving meaningful engagement for both patients and partners.
Through these connections, we have redefined rare patient engagement.
Porphyria Patient and Columnist
Michael Morale
SMA Patient and Sr. Marketing Analytics Manager
For rare,
by rare
More than 50% of our Bionews team are living with or caring for someone with a rare condition.
This unique perspective adds a layer of authenticity, granting us unparalleled credibility and impact by delivering trusted information and fostering stronger advocacy.
In turn, this provides us with invaluable insights that shape our work and partnerships every day, resulting in industry leading performance.
The patient voice advantage
We believe that the patient’s voice should be at the center of the rare conversation.
In Their Own Words:
- We’ll let you know what the communities really want and how they want it.
- We separate the company from its competitors, and we’re proud of it.
- We’ll advise on community sensitivity in language and branding.
- We’ll ignite your purpose.
Brad Dell
Cystic Fibrosis Patient and Director of Community Content
We know rare. Because we are rare.
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Being disabled does not make me any less human.
Lara Govendo
Columnist, Cystic Fibrosis News Today
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- I can’t put on my necklace because I have limited use of my arms.
DeAnn
Community Manager, SMA News Today
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- Mommy, can I lick the chip?
Cayden, 5 years old
Son of Keara Engle, Columnist. Cayden is living with Pompe Disease and is not able to eat solid food
Some of the communities we serve
Join our team
Working at Bionews isn’t just a job — it’s a chance to apply your skills to literally changing people’s lives. If that’s the kind of rare opportunity you’re looking for, we’d love to hear from you.