Where
RARE
ILLNESS
MEETS RARE
SUPPORT
The patients and caregivers who turn to us find not just a trusted source of information and resources but a passionate advocate.
As an advocate, we walk with them on every step of their health journey, provide easily accessible, honest education at diagnosis, and connect thousands in a community with peers who can relate, support, and share.
We work to identify candidates for clinical trial opportunities through a hybrid approach.
We strive to create dynamic communities you can’t find anywhere else that give patients and caregivers a powerful voice and foster meaningful conversations. In doing so, we hope to help create a better future for those living with chronic diseases and the people who care for them.
50+ ENGAGED
RARE COMMUNITIES
Every day, we connect with over 50 communities, delivering meaningful, relevant content. Our content is as unique and rare as the conditions it addresses, and it includes authoritative perspectives from real patients, carefully sourced and cited resource pages, and articles written by veteran journalists and PhDs.
Our disease-specific websites help create communities that have become indispensable to many of the rare diseases we cover, filling the information gaps that exist online.
These connections have allowed us to gain deep insights into the rare patient journey, and that knowledge provides a multitude of opportunities across profile development and clinical trial recruitment.
COMMUNITY MODERATORS
Our communities are built from the stories and connections of those living with rare diseases. From the writers to the forum moderators, the unique patient perspective is always front and center. Below are just a few of the moderators that lend their expertise to our communities.
ALLY MACGREGOR
ALYSSA SILVA
AMANDA SIFFORD
ALS News Today
CHARLENE MARSHALL
Pulmonary Fibrosis News
COLLEEN STEELE
DAGMAR MUNN
DEANN RUNGE
JODI ENDERS
MARY BETH SKYLIS
PRICE WOOLDRIDGE
Lambert-Eaton News
ALLY MACGREGOR
AMANDA SIFFORD
ALS News Today
DAGMAR MUNN
DEANN RUNGE
PRICE WOOLDRIDGE
Lambert-Eaton News
ALYSSA SILVA
COLLEEN STEELE
JODI ENDERS
MARY BETH SKYLIS
CHARLENE
ALLY MACGREGOR
Parkinson’s News Today
Ally Macgregor lives and works in Toronto, Ontario, Canada. She loves being physically active, traveling, cooking, baking, reading, and spending time with friends and family. A lifelong learner, she is currently working on her MBA through the University of Fredericton’s Sandermoen School of Business.
ALYSSA SILVA
SMA News Today
Diagnosed at 5 months of age, Alyssa has set out to raise awareness about life with spinal muscular atrophy (SMA) type 1 through writing. By getting personal and being open about her trials and triumphs, she wants the world to know that SMA can put up a good fight, but we can always fight back exceedingly harder. Aside from writing, Alyssa is the community director for an adaptive fashion brand and has founded her own nonprofit called Working On Walking. In her free time, she enjoys discovering new coffee shops within a 50-mile radius of her hometown in Rhode Island.
AMANDA SIFFORD
ALS News Today
Amanda Sifford is a school psychologist living in Florida. Her family has a history of amyotrophic lateral sclerosis (ALS) spanning multiple generations. Her family has participated in several research studies and has found that they have a mutated gene that is believed to be the cause of ALS. Amanda also has the mutated gene and has been volunteering for ALS research for about 10 years. She brings her experiences to the ALS News Today Forums, connecting with patients and caregivers around the globe.
Charlene Marshall
Pulmonary Fibrosis News
Charlene is a fiercely independent 30-something-year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.
COLLEEN STEELE
PH News
Colleen Steele is a forum moderator and columnist for Pulmonary Hypertension News. She was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. Colleen lives in Washington state with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. As a forum moderator she shares her experience advocating for her son and makes a great effort to help educate, inspire and support other patients and caregivers living with PH.
DAGMAR MUNN
ALS News Today
When Dagmar was diagnosed with amyotrophic lateral sclerosis (ALS) at the age of 59 in 2010, she tapped into her nearly 30 years of professional experience. She not only follows her own wellness and fitness advice but also inspires and teaches others to do the same. Dagmar is a patient columnist for ALS News Today, writing “Living Well with ALS.” In addition, she is one of the moderators for the ALS News Today Forum and writes a personal blog called “ALS and Wellness.” She lives in Arizona, enjoying finding humor in life’s situations, and spends her free time pursuing creative projects in fiber arts.
DEANN RUNGE
SMA News Today
DeAnn’s role at BioNews is multifaceted. Not only does she moderate the forums on SMA News Today, but she also records content for flash briefings and creates vlogs that focus on living life with spinal muscular atrophy (SMA). DeAnn strives to show others that they can live a fulfilled life regardless of challenges. Despite her physical strength being limited, she takes pride in being extremely strong-willed.
JODI ENDERS
Myasthenia Gravis News
Jodi Enders is the forum moderator for Myasthenia Gravis News. Jodi resides in Florida, where she loves to fossil hunt and paddle with manatees in the springs. Jodi hopes that her anthropological specialties in cultural sensitivity, providing resources to marginalized individuals, and engaging digital communities will enhance the perspectives and struggles of those living with myasthenia gravis (MG). Jodi aims to use lived experiences with MG as examples to help spread compassion and mindfulness globally.
MARY BETH SKYLIS
Parkinson’s News Today
Mary Beth is a freelance writer specializing in personal narratives. Her work focuses on the outdoors and the transformative powers of nature. When her dad was diagnosed with Parkinson’s in 2013, her search to understand the disease materialized through language. She now writes to help others understand the disease and how to be a compassionate caregiver.
PRICE WOOLDRIDGE
Lambert-Eaton News
A native Texan, Price was born in the capitol city of Austin in 1949. Price served four years in the U.S. Air Force during the Vietnam War. After completing his service, he returned to college and graduated from the University of Texas at Austin in 1975. The next 30-plus years were spent in broadcasting, primarily in television production, with a couple of early years doing on-the-air work in radio. Price produced and directed one Emmy-winning documentary, received three Emmy nominations for his work, and one Emmy win as a production manager. He retired from broadcasting in 2009 and returned to his home state of Texas to be near family.
PARTNERS
LEADERSHIP
There is no greater example of our commitment to serving rare disease patient communities than the talented, diverse group of professionals who comprise our team. Nowhere else can you find such a group of industry visionaries, award-winning journalists, proven researchers, and inspired patients. By combining all their unique skill sets and experience, they are able to create the content and environment that make our communities special.
Here are just a few featured profiles from among our growing team of talented professionals:
CHRIS COMISH
Founder/CEO
BRIAN KEIGLEY
President BioNews
KELLIE BENN
VP of Content
MARCELLA DEBIDDA
President BioNews Clinical
BRAD DELL
Director of Community Content
BRITTANY FOSTER
People and Culture Manager
SHANA GRAY
Copy Chief
ASHLEY KAYWOOD
VP of Client Strategy and Success
JOSH KRAMON
EVP of Business Development
JEFF LAPOINTE
SVP of Technology
MICHAEL MORALE
Project Communications Manager
JENN POWELL
Brand Marketing Manager
ISAURA SANTOS
Director of Social Media
KEVIN SCHAEFER
Associate Director of Community Content
PATRICIA SILVA
Director of Science Content
CHRIS COMISH
Founder/CEO
BRIAN KEIGLEY
President BioNews
KELLIE BENN
Editor in Chief
MARCELLA DEBIDDA
President BioNews Clinical
BRAD DELL
Director Columns
SHANA GRAY
Copy Chief
JOSH KRAMON
EVP of Business Development
ISAURA SANTOS
Director of Multimedia Services
PATRICIA SILVA
Senior Managing News Editor
JENN POWELL
Brand Marketing Manager
BRITTANY FOSTER
People and Culture Manager
ASHLEY KAYWOOD
VP of Client Strategy and Success
MICHAEL MORALE
Project Communications Manager
KEVIN SCHAEFER
Director Forums
JEFF LAPOINTE
SVP of Technology
KELLIE BENN
VP of Content
Kellie started out as a copy editor with BioNews in February 2018 and now serves as VP of content of the organization. She had previously worked for a variety of newspapers as a copy editor, working her way up to deputy night editor at a regional newspaper in Virginia. She is an Army veteran and served for eight years as a Russian linguist. After leaving the service, she went on to graduate from Trinity University in San Antonio, Texas, with a bachelor’s degree in communication and Russian. Her interest in and experience with the Russian language led her to a Fulbright fellowship in 2012, awarding her the opportunity to spend an academic year in Oryol, Russia, teaching English to university students. A lifelong equestrian, she can usually be found at the barn hanging out with her horse, Penny, in her spare time.
BRIAN KEIGLEY
President BioNews
Brian Keigley is the President of BioNews. Brian began working with BioNews in a consulting role in 2020 before becoming President in 2022. Brian has a long and very successful career as founder, startup expert and digital media executive. He launched and sold several companies and, most recently, spent 12 years building the sales and marketing divisions of a successful digital media company.As President, Brian oversees sales and client operations and works alongside the CEO and SVP of Strategy and Growth, in defining BioNews’ corporate strategy. Brian continues to refine the company’s operations and positions BioNews for rapid market expansion.
CHRIS COMISH
Founder/CEO
Chris developed the BioNews concept as a way to leverage digital news content as a means of reaching and connecting with rare disease populations who had little to no access to fresh, accurate, and authoritative information about their disease online. His vision has fueled the growth and maturation of patient/caregiver ecosystems that are enriching rare disease communities online while also providing a platform for offering valuable services for helping biotech, health, and life sciences companies fulfill their marketing and promotional objectives. Chris works in every facet of the BioNews work process, from serving as a direct contact with all clients to helping shape the editorial focus of each site in the publisher role.
MARCELLA DEBIDDA
President BioNews Clinical
Marcella is the president of BioNews Clinical where she is involved in every facet of the work process that connects patients in our rare disease communities with ongoing clinical trials. As a creative builder and change agent, her mission is to promote a human-centered healthcare system built on empathy and radical collaboration: where patients are integral contributors to the collective efforts aimed at advancing the understanding and cure of rare and chronic diseases. Over the past 12 years, across multiple organizations, including Harvard Clinical Research Institute, Science 37, and monARC Bionetworks, she led a multitude of patient-centric projects spanning from patient-powered trial design, patient recruitment and engagement for traditional and virtual/remote clinical trials, patient community development, growth, and engagement through co-creation with peers. She serves as an adviser to pharmaceutical companies, nonprofit organizations, healthcare innovation accelerators and startups for topics related to effective patient engagement in clinical trials and co-creation with patients.
BRAD DELL
Director of Community Content
Brad Dell has cystic fibrosis and a double-lung transplant. Technically deaf, he hears with the help of cochlear implants. Before BioNews, he worked as a copy editor and journalist for several culture and lifestyle magazines in Hawaii. He was also the executive editor for Honolulu’s Abstract Magazine. He serves as the BioNews director of community content, boosting patients’ and caregivers’ voices to cultivate change in the chronic conditions community. To do so, he recruits, trains, edits, and supports dozens of columnists.
BRITTANY FOSTER
People and Culture Manager
Brittany Foster is the people and culture manager at BioNews and a columnist for Pulmonary Hypertension News. She has a bachelor’s degree from Providence College in special education, elementary, and middle school education. Prior to BioNews, she worked as an eighth-grade special educator. She took her passion for advocating for students in a classroom and now advocates for those with rare diseases.
It is her mission as people and culture manager to ensure all hires have this same passion and desire to achieve a better quality of life for our patient communities. Brittany leads the management of BioNews’ HR information system, onboarding and offboarding, company training, recruiting and hiring, benefits enrollment and works with the accounting team to coordinate payroll changes for BioNews.
Brittany lives in Cranston, Rhode Island, where she loves to explore hiking trails with her Cavalier King Charles spaniel, Bernie.
SHANA GRAY
Copy Chief
Shana Gray has served as copy chief with BioNews since March 2022. She previously worked for a number of newspapers in the Southeast, serving most recently as editor of six local news publications in Virginia. Shana started working at newspapers in high school and worked her way through college while serving at The Fayetteville (N.C.) Observer, in her hometown. She now resides in Hampton Roads, Virginia, where she enjoys reading in sight of the Chesapeake Bay and playing with her two pups, Roxie and Gus.
MELISSA MANGAR
VP of Media Operations
Melissa joined BioNews as vice president of media operations. She has been dedicated to the pharmaceutical advertising industry for eight years but has been involved in the medical administration field for 12-plus years. Her most recent accomplishments stem from her previous positions in project management and operations, innovating the daily processes internally while helping to deliver exceptional educational tools to physicians and patients. Melissa currently resides in New York, enjoys spending time with her family, and loves music.
MICHAEL MORALE
Project Communications Manager
Michael received his bachelor of science in business administration, with a major in management information systems in 1990, from the University of Texas at Dallas. In 2000, he received his MBA, with a major in management, from Amber University. In his working career, Michael worked for various companies, including ExxonMobil Corporation, where he was responsible for safety and ergonomics for the Dallas region. Along with working for ExxonMobil, Michael was an adjunct faculty member and college instructor for the Dallas County Community College District for 18 years. Due to his spinal muscular atrophy, he was forced to go on permanent disability in 2010.
Michael began working for BioNews Services as a YouTube developer and podcast specialist in June 2018. Michael is the project communications manager collaborating with executive leadership and management to obtain, organize, and summarize relevant project information and reports information and analytics directly to the CEO on a daily, weekly, and monthly basis. Michael ensures the tracking and reporting of entire project life cycles and ensures that deadlines are met and remain on budget.
JENN POWELL
Brand Marketing Manager
Jenn Powell is the BioNews brand marketing manager. She lives in Southern California where she enjoys volunteering for animal rescue and spending time with her husband and golden retrievers. In her four years with BioNews, Jenn has created content for and collaborated with multiple divisions of BioNews, including BioNews Insights and BioNews Clinical. Jenn is driven to elevate the needs of those in the rare disease communities. She has done so through her column, reading of news briefings, and hosting the recently launched MS News Podcast. Her patient perspective complements her passion and industry acumen for cultivating and engaging communities both within and outside of BioNews.
ISAURA SANTOS
Director of Social Media
Isaura Santos is the director of social media at BioNews. She has a bachelor’s degree in cellular and molecular biology, and a master’s in communication, culture and information technologies. She is also a recording artist in Portugal. She loves to sing, compose, and produce music. She has a love for backpacks and is a technology and gadgets “nerd.” Isaura loves photography and shoots film photography. In her free time, she watches the entire series of “How I Met Your Mother” and has watched the series more than 10 times.
DAN SCHWARTZ
EVP of Business Development
Dan is the BioNews EVP of business development. For over 20 years, he’s led teams in similar roles, most recently with CheckedUp where he was responsible for launching a new telemedicine platform designed for physicians and patients in specialty care. Dan specializes in working with pharma marketers to enable them to better and more effectively communicate with doctors, patients, and caregivers. He currently lives in the greater NYC metro area where he enjoys hiking, golfing, and a variety of outdoor activities.
KEVIN SCHAEFER
Associate Director of Community Content
Kevin graduated from North Carolina State University with a bachelor’s degree in English in 2016, and he is passionate about different forms of storytelling. He started at BioNews in 2017 as a columnist for SMA News Today, sharing his experiences as an adult with spinal muscular atrophy type 2. He eventually transitioned to a full-time role, helping build the company’s multimedia and forums divisions. As associate director of community content, he is responsible for supporting the director of community content in bridging the gap between our patient populations and our websites. He does this through building and maintaining patient and caregiver forums across BioNews’ disease sites. He oversees every step of the process, from hiring, training, and guiding forum moderators. His goal is to create engaging and supportive online communities for patients and caregivers to connect.
PATRICIA SILVA
Director of Science Content
Patricia holds a PhD in medical microbiology and infectious diseases from the Leiden University Medical Center in Leiden, Netherlands. She has studied applied biology at Universidade do Minho and was a postdoctoral research fellow at institute de Medical Moleculer in Lisbon, Portugal. Her role at BioNews has led her to build a team of PhD researchers who serve as science writers and editors, whose role is to ensure that the science and research that BioNews reports on daily is 100% accurate, while also written in a way that allows patients and caregivers to easily grasp the important details.
JOSHUA PYLE
VP of Growth
Joshua Pyle joined BioNews in May 2022 as the VP of Growth. Josh reports to the SVP of Strategy and Growth. Josh has spent 15+ years in various digital commercialization and growth roles, the majority of his efforts being with startups and companies in the rapid growth stage. Most recently, Josh served as the Execute Director of Digital Strategy at Health Union, and prior to that, he was the Head of Digital and Innovation at WEGO Health. After spending the past seven years working with patient communities, his perspective on what meaningful work could be completely changed. Josh has developed a sincere passion for making the patient journey better and for making sure patients’ points of view and individual stories are highlighted to educate and inspire others when they need it most.
JOSH KRAMON
EVP of Business Development
As the executive vice president of business development at BioNews, Josh Kramon leads all sales and business development initiatives. He comes to BioNews with more than 25 years of experience focused on the tech, data, and media side of life sciences. He’s managed business development teams at Doctor.com, Crossix, Vitals, and Healthline, and as an executive team member, led several of them to successful corporate acquisition.
ASHLEY KAYWOOD
VP of Client Strategy and Success
Ashley Kaywood joined BioNews in July 2022 as vice president of client strategy and success. Ashley is a passionate and experienced client services and revenue operations leader with more than 10 years of experience in the digital health space. She is laser focused on creating operational efficiencies, providing customer focused solutions, and the strategic growth of revenue and people. She has previously worked for Everyday Health, Medicx Health and Adprime Health. Ashley is from New Haven, Connecticut, and resides in Jersey City, New Jersey, with her dog, Cooper, and cat, Olivia.
JEFF LAPOINTE
SVP of Technology
Jeff LaPointe joined BioNews as the senior vice president of technology in 2022. Jeff has spent the last 20 years in digital health startups and patient advocacy as a founder and executive leader. He has built digital health platforms that have driven more than 1 billion healthcare consumers to make better cost and quality decisions by enabling healthcare transparency at scale. At BioNews, Jeff is leveraging his expertise in digital marketing and technology to enhance the digital user experience and drive site growth.