Rare disease news & community network

Research made accessible. Real stories. An informed care journey.

Navigate your care with confidence.  From breaking research news to patient stories, we bring you the information you need to feel prepared. Across 50+ rare and chronic disease communities, get the latest updates, connect with advocacy organizations and find support from people who understand your journey.

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AADC News
Angioedema News
aHUS News
ALS News Today
Alzheimer’s News Today
Amyloidosis News Today
ANCA Vasculitis News
Angelman Syndrome News
Ankylosing Spondylitis News
Batten Disease News
Cold Agglutinin News
Cystic Fibrosis News Today
Charcot-Marie-Tooth News
COPD News Today
Cushing’s Disease News
Dravet Syndrome News
Ehlers-Danlos News

Epidermolysis Bullosa News
Friedreich’s Ataxia News
Fabry Disease News
FAP News Today
Fragile X News Today
Gaucher Disease News
Hemophilia News Today
Huntington’s Disease News
Hypoparathyroidism News
IgG4-RD News
Lambert-Eaton News
Liver Disease News
Lupus News Today
Muscular Dystrophy News Today
Multiple Sclerosis News Today
Myasthenia Gravis News
Neuromyelitis News
Parkinson’s News Today
Pulmonary Fibrosis News
Pulmonary Hypertension News
PNH News
Pompe Disease News
Porphyria News
Prader-Willi Syndrome News
Rare Cancer News
Rett Syndrome News
Sanfilippo News
Sarcoidosis News
Scleroderma News
Sickle Cell Disease News
Sjogren’s Syndrome News
SMA News Today

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Comprehensive disease management and lifestyle information

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Organizations providing support, resources and connection

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From our Bionews community

“Bionews has acted as a counselor who sits across the table from me and listens to my pains, thoughts, and concerns. They have helped me immensely throughout my journey.”

– Jaime Christmas
Caregiver Advocate at
FAP News Today

“Bionews is a wonderful company because almost all of us are patients representing a variety of rare diseases. We are a true community.”

– Dagmar Munn
Patient Advocate at
ALS News Today

“Bionews makes sure the world knows that we deserve to be heard.”

– Halsey Blocher
Columns Manager and Patient Advocate at SMA News Today

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We regularly collaborate with patients, caregivers and advocacy organizations to share real experiences and community perspectives.

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