Dr. Marcella Debidda, PhD is a healthcare innovation leader with over 15 years of experience advancing research and care strategies shaped by the lived experience of patients and caregivers across organizations including Harvard Clinical Research Institute, Science 37, monARC Bionetworks, and Stanford Medicine X.

At Bionews, she leads the Clinical and the Patient Insights divisions, where she examines how rare disease patients find and act on health information, and how that behavior shapes robust data collection. She is widely recognized for developing scalable approaches to incorporate patient and caregiver expertise into research design, clinical development, and policy decision-making.

Dr. Debidda has led initiatives in patient-powered trial design, recruitment strategies, and sustainable community development across more than 50 conditions, integrating behavioral science and qualitative research to define what effective, trust-based rare disease engagement looks like for modern drug development.

Lindsey Wahlstrom, MPH is a patient recruitment and research engagement leader who has spent more than a decade shaping patient partnerships and centering real-life experiences in data-driven research. Her work has driven participant-centered recruitment in over 220 clinical trials, defining what effective, dignified rare disease engagement looks like for modern research.

In her executive leadership roles, she focuses on how rare disease patient behaviors shape longitudinal data collection and strategic engagement divisions. Following her daughter’s rare disease diagnosis in 2023, Wahlstrom co-founded Rona’s FUN LAB to factor quality of life into the clinical research equation, speaking nationally on how the industry can balance scientific breakthroughs with human connection.

Her background integrates behavioral insights, digital health performance, and academic research partnerships. A graduate of Columbia University’s Mailman School of Public Health with an MPH in Epidemiology and Health Policy, Wahlstrom actively collaborates across the healthcare ecosystem to keep building bridges between data, dignity, and clinical innovation.

Dr. Amy Price (DPhil, Oxon) is an expert in neuroscience, evidence-based healthcare, and research methodologies, specializing in the co-production of clinical evidence and health technology. She serves as the Editor-in-Chief of the Journal of Participatory Medicine and holds affiliations with the Colorado School of Public Health and Dartmouth Health. A dedicated champion for embedding the patient voice directly into clinical workflows, her work focuses on the ethical integration of AI in healthcare, research reporting guidelines, and evaluating real-world evidence to ensure it is robust, transparent, and accessible.