Clinical Insights
The Science of Being Understood
Virtual Event
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September 24, 2026
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2:00 PM ET
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Webinar
You'll benefit most if you are:
This event is designed for biopharma brand teams, biotech commercial leaders, and agency partners across brand strategy, patient advocacy, patient insights, and media planning, particularly those focused on rare disease and high-stakes interventions like gene therapy. It is ideal for anyone interested in innovative ways to develop campaigns, elevate brand strategy, and increase engagement through patient understanding, replacing anecdotal approaches with statistically validated, evidence-based audience models.
Event Summary
In rare diseases, most of what we think we know about patients, and how we act on it, is really just assumptions: personas built from anecdotes, strategies borrowed from mass-market playbooks, and digital profiles. Bionews built a statistically validated model of gene therapy readiness, derived from proprietary research conducted with and within our rare disease communities. The findings challenge how the industry defines, segments, understands, and engages rare disease audiences.
This event pairs a brief presentation of the new research with a panel discussion on what happens when marketing is held to the standard of science: an understanding of patients grounded in who they actually are, not in who we imagine them to be.
Speakers
Key Discussion Topics
Statistical Validation vs. Anecdotal Assumptions
Moving away from standard, anecdotal personas and mass-market playbooks toward evidence-based strategies in rare disease marketing.
The Gene Therapy Readiness Model
Unpacking Bionews' new persona model built specifically around gene therapy readiness.
Rethinking Audience Segmentation & Definition
A deeper, evidence-led approach to defining, segmenting, and reaching rare disease communities.
Building Trust Through Science Over Instinct
Holding rare disease marketing and media engagement to the same rigorous standards as clinical science.
Ideal For:
- Commercial Strategy & Brand Leadership
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Patient Engagement, Advocacy & Insights Teams
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Healthcare Media & Agency Partners
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Healthcare & Scientific Strategists
Why Attend
- Access cutting-edge models Be among the first to see Bionews' statistically validated persona model for gene therapy readiness.
- Ditch the guesswork Learn how to replace anecdotal marketing assumptions with rigorous, evidence-based audience insights.
- Build earlier trust Discover proven frameworks to create authentic, high-impact connections with rare disease communities.
- Hear from industry leaders Gain actionable strategies through an expert panel on holding rare disease marketing to the standard of science.