Bionews Insights
Get exclusive patient & industry insights and diverse perspectives to navigate the complexities of rare disease marketing.
Rare Disease Content That Captivated the Community in 2024
Discover the top articles that resonated most with our communities and learn how patient voices shaped impactful storytelling.
A Collaborative Approach to Better Health
Read our key takeaways from the NIH-funded deliberative event on prenantal gene editing, and how the patient voice is invaluable in these conversations.
Patient power: A Q&A about Bionews’ Patient Advisory Board
Discover how Bionews is putting patients first. Read our Q&A with Brad Dell, Director of Community Content.
Leveraging rare patient insights for deeper engagement
In this Q&A, Marcella Debidda, President of Bionews Clinical and Insights, discusses the importance of patient-driven data in the rare disease community. Learn how Bionews leverages patient insights to foster deeper engagement, inform healthcare strategies, and drive meaningful change.
Survey snapshot: Daily living challenges for people with rare diseases
Our 2024 Rare Disease Survey sheds light on the significant daily challenges faced by individuals with rare diseases. Discover key insights into physical limitations, emotional well-being, pain, unpredictable symptoms, and gender differences.
The patient experience: 2024 Bionews Rare Patient Survey
Key takeaways: Living with rare disease
Uncover the realities of living with a rare disease. This in-depth 6-page PDF report, based on a nationwide survey of over 5,000 patients, provides detailed insights into diagnostic and treatment journeys, daily life challenges, and unmet needs.