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RARE AND
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COMMUNITIES
BioNews’ web and social media platforms provide vibrant, dynamic patient/caregiver communities that you can’t find anywhere else. We are a unique and trusted resource for information and we offer a safe space for allies and advocates to exchange experiences, form connections, and gain the hope and understanding they are searching for.
JENN’S STORY
Living with a progressive and incurable disease is a lesson in accepting the unacceptable.
JENN’S STORY
Living with a progressive and incurable disease is a lesson in accepting the unacceptable.
DAGMAR’S STORY
The complicated answer to “Have you ever participated in clinical trials?”
KEVIN’S STORY
Expanding clinical trial access for adults with SMA
BRAD’S STORY
Clinical trials for the rarest: worth the head-scratching
MICHAEL’S STORY
A chat with Michael Morale, SMA advocate
CHARLENE’S STORY
Reflections on the five-year anniversary of when I first heard the words “idiopathic pulmonary fibrosis”
BRITTANY’S STORY
How a research study for pulmonary hypertension helped uncover unknown conditions