RareNews by Bionews is your weekly dose and clinical edge in rare disease management.

Get all your need-to-know rare disease information in one place.

RareNews

Join the thousands of health professionals already receiving RareNews!

Navigating a landscape of over 7,000 rare diseases is a challenge for any practitioner. We curate the essential updates you need to stay current—helping you recognize signs earlier, shorten the diagnostic odyssey, and deliver better patient care.

RareNews provides:

  • Highlights across 50+ rare conditions
  • Physician-led videos on disease management
  • Breaking trial data and regulatory actions
  • Disease-specific clinical guides

The Clinician’s Source for Rare Disease News

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50+ Rare Conditions

Broad disease coverage

Designed for clinicians

Practice-relevant information

Weekly and free

Delivered directly to your inbox

You'll receive highlights of the latest news and research in rare disease

From trial data to FDA approvals to diagnostic criteria and clinical best practices, we cover everything you need in rare disease information.

01
Clinical developments

Meaningful evidence and practice-relevant updates.

02
Trials and approvals

Trial data, regulatory actions, and treatment news.

03
Clinician resources

Disease-specific guides and expert-led videos.

Our Trusted Partners

We’ve partnered with many of the leading advocacy organizations and groups in our disease communities to help improve the lives of millions of patients.

SMA Europe
Pompe Alliance
National Fabry Disease Foundation
PHAware Global Association
ALS Network
FRAXA
United Porphyrias Association
EB Research Partnership
Pompe Warrior Foundation
National Ataxia Foundation
Myasthenia Gravis Foundation of America
SMA Europe
Pompe Alliance
National Fabry Disease Foundation
PHAware Global Association
ALS Network
FRAXA
United Porphyrias Association
EB Research Partnership
Pompe Warrior Foundation
National Ataxia Foundation
Myasthenia Gravis Foundation of America
ALS Association
Myasthenia Gravis Foundation of America
hdreach
Muscular Dystrophy Association
CAN DO Multiple Sclerosis
Angelman Syndrome Foundation
Cure CMD
Cold Agglutinin Disease Foundation
Friedreich's Ataxia Research Association
Cure Duchenne
ALS Association
Myasthenia Gravis Foundation of America
hdreach
Muscular Dystrophy Association
CAN DO Multiple Sclerosis
Angelman Syndrome Foundation
Cure CMD
Cold Agglutinin Disease Foundation
Friedreich's Ataxia Research Association
Cure Duchenne

Testimonials

Below are some quotes from practitioners who recieve RareNews. 

“RareNews keeps me updated across many rare conditions in Neurology”

–John Smith, MD
New York, NY

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“RareNews keeps me updated across many rare conditions in Neurology”

–John Smith, MD
New York, NY

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