RareNews by Bionews is your weekly dose and clinical edge in rare disease management
Get all your need-to-know rare disease information in one place.
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RareNews provides:
- Highlights across many rare conditions
- Breaking R&D & Trial Data
- The Patient-Centric View
- Peer Videos from Experts (Coming soon)
- Clinical Guides (Coming soon)
- and much more
You’ll receive highlights of the latest news and research in rare
From trial data, to published articles, to FDA-approvals, we cover everything you need in rare disease information.
You’ll receive the bi-weekly RareNews enewsletter in your inbox with links to the latest news and research articles.
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The rare conditions we cover
Bionews has spent over a decade building the largest online network of rare disease communities, reaching an astounding average of 72% of the domestic diagnosed patient population. Our team of medical writers collaborates with KOL advisors in each specialty to ensure we are providing accurate, timely, and actionable information.
Angioedema
aHUS
ALS
Alzheimer’s Disease
ANCA Vasculitis
Angelman Syndrome
Ankylosing Spondylitis
Batten Disease
Cold Agglutinin
Cystic Fibrosis
Charcot-Marie-Tooth
COPD
Cushing’s Disease
Dravet Syndrome
Ehlers-Danlos
Epidermolysis Bullosa
Friedreich’s Ataxia
Fabry Disease
FAP
Fragile X
Gaucher Disease
Hemophilia
Huntington’s Disease
Hypoparathyroidism
IgG4-RD
Lambert-Eaton
Liver Disease
Lupus
Muscular Dystrophy
Multiple Sclerosis
Myasthenia Gravis
Parkinson’s
Pulmonary Fibrosis
Pulmonary Hypertension
PNH
Pompe Disease
Porphyria
Prader-Willi Syndrome
Rare Cancer
Rett Syndrome
Sanfilippo
Sarcoidosis
Scleroderma
Sickle Cell Disease
Sjogren’s Syndrome
SMA
Our Trusted Partners
We’ve partnered with many of the leading advocacy organizations and groups in our disease communities to help improve the lives of millions of patients.
Testimonials
Below are some quotes from practitioners who recieve RareNews.
“RareNews keeps me updated across many rare conditions in Neurology”
–John Smith, MD
New York, NY
“RareNews keeps me updated across many rare conditions in Neurology”
–John Smith, MD
New York, NY




















