RareNews by Bionews is your weekly dose and clinical edge in rare disease management

Get all your need-to-know rare disease information in one place.

Join the thousands of health professionals already receiving RareNews!

Navigating a landscape of over 7,000 rare diseases is a challenge for any practitioner. We curate the essential updates you need to stay current—helping you recognize signs earlier, shorten the diagnostic odyssey, and deliver better patient care.

RareNews provides:

  • Highlights across many rare conditions
  • Breaking R&D & Trial Data
  • The Patient-Centric View
  • Peer Videos from Experts (Coming soon)
  • Clinical Guides (Coming soon)
  • and much more

You’ll receive highlights of the latest news and research in rare

From trial data, to published articles, to FDA-approvals, we cover everything you need in rare disease information.

RareNews

You’ll receive the bi-weekly RareNews enewsletter in your inbox with links to the latest news and research articles.

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The rare conditions we cover

Bionews has spent over a decade building the largest online network of rare disease communities, reaching an astounding average of 72% of the domestic diagnosed patient population. Our team of medical writers collaborates with KOL advisors in each specialty to ensure we are providing accurate, timely, and actionable information.

AADC
Angioedema
aHUS
ALS
Alzheimer’s Disease
ANCA Vasculitis
Angelman Syndrome
Ankylosing Spondylitis
Batten Disease
Cold Agglutinin
Cystic Fibrosis
Charcot-Marie-Tooth
COPD
Cushing’s Disease
Dravet Syndrome
Ehlers-Danlos

Epidermolysis Bullosa
Friedreich’s Ataxia
Fabry Disease
FAP
Fragile X
Gaucher Disease
Hemophilia
Huntington’s Disease
Hypoparathyroidism
IgG4-RD
Lambert-Eaton
Liver Disease
Lupus
Muscular Dystrophy
Multiple Sclerosis
Myasthenia Gravis

Neuromyelitis
Parkinson’s
Pulmonary Fibrosis
Pulmonary Hypertension
PNH
Pompe Disease
Porphyria
Prader-Willi Syndrome
Rare Cancer
Rett Syndrome
Sanfilippo
Sarcoidosis
Scleroderma
Sickle Cell Disease
Sjogren’s Syndrome
SMA

Our Trusted Partners

We’ve partnered with many of the leading advocacy organizations and groups in our disease communities to help improve the lives of millions of patients.

SMA Europe
Pompe Alliance
National Fabry Disease Foundation
PHAware Global Association
ALS Network
FRAXA
United Porphyrias Association
EB Research Partnership
Pompe Warrior Foundation
National Ataxia Foundation
Myasthenia Gravis Foundation of America
SMA Europe
Pompe Alliance
National Fabry Disease Foundation
PHAware Global Association
ALS Network
FRAXA
United Porphyrias Association
EB Research Partnership
Pompe Warrior Foundation
National Ataxia Foundation
Myasthenia Gravis Foundation of America
ALS Association
Myasthenia Gravis Foundation of America
hdreach
Muscular Dystrophy Association
CAN DO Multiple Sclerosis
Angelman Syndrome Foundation
Cure CMD
Cold Agglutinin Disease Foundation
Friedreich's Ataxia Research Association
Cure Duchenne
ALS Association
Myasthenia Gravis Foundation of America
hdreach
Muscular Dystrophy Association
CAN DO Multiple Sclerosis
Angelman Syndrome Foundation
Cure CMD
Cold Agglutinin Disease Foundation
Friedreich's Ataxia Research Association
Cure Duchenne

Testimonials

Below are some quotes from practitioners who recieve RareNews. 

“RareNews keeps me updated across many rare conditions in Neurology”

–John Smith, MD
New York, NY

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“RareNews keeps me updated across many rare conditions in Neurology”

–John Smith, MD
New York, NY

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