Where

RARE
ILLNESS
MEETS RARE
SUPPORT

The patients and caregivers who turn to us find not just a trusted source of information and resources but a passionate advocate.

As an advocate, we walk with them on every step of their health journeyprovide easily accessible, honest education at diagnosis, and connect thousands in a community with peers who can relate, support, and share.

We work to identify candidates for clinical trial opportunities through a hybrid approach.

We strive to create dynamic communities you can’t find anywhere else that give patients and caregivers a powerful voice and foster meaningful conversations. In doing so, we hope to help create a better future for those living with chronic diseases and the people who care for them.

50+ ENGAGED
RARE COMMUNITIES

Every day, we connect with over 50 communities, delivering meaningful, relevant content. Our content is as unique and rare as the conditions it addresses, and it includes authoritative perspectives from real patients, carefully sourced and cited resource pages, and articles written by veteran journalists and PhDs.

Our disease-specific websites help create communities that have become indispensable to many of the rare diseases we cover, filling the information gaps that exist online.

These connections have allowed us to gain deep insights into the rare patient journey, and that knowledge provides a multitude of opportunities across profile development and clinical trial recruitment.

Multiple Sclerosis News Today
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Multiple Sclerosis News Today

COMMUNITY MODERATORS

Our communities are built from the stories and connections of those living with rare diseases. From the writers to the forum moderators, the unique patient perspective is always front and center. Below are just a few of the moderators that lend their expertise to our communities.

 

PARTNERS

Lundbeck
Biogen
Hillrom
Lundbeck
Bristol Myers Squibb
Janssen
Lundbeck
EMD Serono
Actelion
Lundbeck
Genentech
Mitsubishi Tanabe Pha
Lundbeck
Genzyme
Neurocrine Biosciences
Sunovion
United Therapeutics Sorporation
United Therapeutics Sorporation
World Orphan Drug Congress USA 2024 Logo
Lundbeck
Lundbeck
Bristol Myers Squibb
Genzyme
Actelion
Lundbeck
Lundbeck
EMD Serono
Hillrom
Mitsubishi Tanabe Pha
Lundbeck
Biogen
Genentech
Janssen
Neurocrine Biosciences
Sunovion
United Therapeutics Sorporation
United Therapeutics Sorporation
World Orphan Drug Congress USA 2024 Logo

LEADERSHIP

There is no greater example of our commitment to serving rare disease patient communities than the talented, diverse group of professionals who comprise our team. Nowhere else can you find such a group of industry visionaries, award-winning journalists, proven researchers, and inspired patients. By combining all their unique skill sets and experience, they are able to create the content and environment that make our communities special.

Here are just a few featured profiles from among our growing team of talented professionals: