ABOUT BIONEWS

The #1 Source for Rare Disease News & Community

Since 2013, Bionews has been serving and supporting patients and caregivers by delivering trusted news, research, and community.

With over 50 condition-specific communities, we’ve built a unique ecosystem where credible medical information and lived patient insights come together in a trusted, peer-connected space.

More than half of our team lives with or cares for someone with a rare condition, giving us a deep, personal understanding of the challenges these communities face. This authenticity, combined with over a decade of focus, has made Bionews the most trusted voice in rare disease today.

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“Our content is more than information; it’s a lifeline for those navigating rare and chronic diseases.”

Jenn Powell

Living with Secondary Progressive MS, Brand
& Marketing Manager at Bionews

Our Mission

To inform, support, and connect rare disease patients and caregivers through trusted news, research, and community—empowering them with credible information, authentic voices, and meaningful peer connection at every step of their journey.

Leadership Team

Bionews is led by a unique mix of award-winning journalists, healthcare strategists, data scientists, and patient advocates—many of whom live with, or care for someone with, a rare condition themselves. This blend of industry expertise and lived experience shapes the trusted news and highly engaged communities that set Bionews apart.

Below are a few of the people driving our 50-plus condition-specific sites—and the patient-first results that follow.

Rare Leadership

Strategic advisory board

The Bionews Advisory Board members bring a wealth of experience from across the healthcare spectrum: pharmaceutical development, digital media, strategic planning, and more. We are proud to bring together this group of experts, all dedicated to improving patient health by supporting Bionews’ mission.

Courtney Cruz

Senior Director, Integrated Media Strategy – Specialty Care, Pfizer

Christopher French

Founder, Westwood Advisory

David Kopp

Board Director and Advisor, Former CEO, Healthline

Kimberly Moran

Senior Vice President and Head, Rare Diseases US, UCB

Bill Paquin

Chief Commercial Officer, Prognos Health