ABOUT BIONEWS
The #1 Source for Rare Disease News & Community
Since 2013, Bionews has been serving and supporting patients and caregivers by delivering trusted news, research, and community.
With over 50 condition-specific communities, we’ve built a unique ecosystem where credible medical information and lived patient insights come together in a trusted, peer-connected space.
More than half of our team lives with or cares for someone with a rare condition, giving us a deep, personal understanding of the challenges these communities face. This authenticity, combined with over a decade of focus, has made Bionews the most trusted voice in rare disease today.


“Our content is more than information; it’s a lifeline for those navigating rare and chronic diseases.”
Jenn Powell
Living with Secondary Progressive MS, Brand
& Marketing Manager at Bionews
Our Mission
To inform, support, and connect rare disease patients and caregivers through trusted news, research, and community—empowering them with credible information, authentic voices, and meaningful peer connection at every step of their journey.
Leadership Team
Bionews is led by a unique mix of award-winning journalists, healthcare strategists, data scientists, and patient advocates—many of whom live with, or care for someone with, a rare condition themselves. This blend of industry expertise and lived experience shapes the trusted news and highly engaged communities that set Bionews apart.
Below are a few of the people driving our 50-plus condition-specific sites—and the patient-first results that follow.

Chris Comish

Brian Keigley

Ethan Ash

Kellie Benn

Marcella Debidda

Lauren Hannon

Ashley Kaywood

Jeff LaPointe

Kellie Benn
Senior Vice President of Editorial
Kellie started out as a copy editor with Bionews in February 2018 and now serves as SVP of Editorial of the organization. She had previously worked for a variety of newspapers as a copy editor, working her way up to deputy night editor at a regional newspaper in Virginia. She is an Army veteran and served for eight years as a Russian linguist. After leaving the service, she went on to graduate from Trinity University in San Antonio, Texas, with a bachelor’s degree in communication and Russian. Her interest in and experience with the Russian language led her to a Fulbright fellowship in 2012, awarding her the opportunity to spend an academic year in Oryol, Russia, teaching English to university students. A lifelong equestrian, she can usually be found at the barn hanging out with her horse, Penny, in her spare time.

Brian Keigley
President
Brian began working with Bionews in a consulting role in 2020 before becoming president in 2022. Brian has a long and very successful career as a founder/startup expert and digital media executive. He launched and sold several companies and, most recently, spent 12 years building the sales and marketing divisions of a successful digital media company. As president, Brian oversees sales and client operations and works alongside the CEO and SVP of Strategy and Growth in defining Bionews’ corporate strategy. Brian continues to refine the company’s operations and positions Bionews for rapid market expansion.

Chris Comish
Founder/CEO
Chris developed the Bionews concept as a way to leverage digital news content as a means of reaching and connecting with rare disease populations who had little to no access to fresh, accurate, and authoritative information about their disease online. His vision has fueled the growth and maturation of patient/caregiver ecosystems that are enriching rare disease communities online while also providing a platform for offering valuable services for helping biotech, health, and life sciences companies fulfill their marketing and promotional objectives. Chris works in every facet of the Bionews work process, from serving as a direct contact with all clients to helping shape the editorial focus of each site in the publisher role

Marcella Debidda
President of Patient Insights and Clinical Solutions
In her role, Marcella is involved in every facet of the work process that connects patients in our rare disease communities with ongoing clinical trials. As a creative builder and change agent, her mission is to promote a human-centered healthcare system built on empathy and radical collaboration, where patients are integral contributors to the collective efforts aimed at advancing the understanding and cure of rare and chronic diseases. Over the past 12 years, across multiple organizations, including Harvard Clinical Research Institute, Science 37, and monARC Bionetworks, she led a multitude of patient-centric projects spanning from patient-powered trial design, patient recruitment and engagement for traditional and virtual/remote clinical trials, patient community development, growth, and engagement through co-creation with peers. She serves as an adviser to pharmaceutical companies, nonprofit organizations, healthcare innovation accelerators, and startups for topics related to effective patient engagement in clinical trials and co-creation with patients.

Brad Dell
Director of Community Content
Brad Dell has cystic fibrosis and a double-lung transplant. Technically deaf, he hears with the help of cochlear implants. Before Bionews, he worked as a copy editor and journalist for several culture and lifestyle magazines in Hawaii. He was also the executive editor for Honolulu’s Abstract Magazine. He serves as the Bionews director of community content, boosting patients’ and caregivers’ voices to cultivate change in the chronic conditions community. To do so, he recruits, trains, edits, and supports dozens of columnists.

Brittany Foster
People and Culture Manager
Brittany Foster is the people and culture manager at Bionews and a columnist for Pulmonary Hypertension News. She has a bachelor’s degree from Providence College in special education, elementary, and middle school education. Prior to Bionews, she worked as an eighth-grade special educator. She took her passion for advocating for students in a classroom and now advocates for those with rare diseases.
It is her mission as people and culture manager to ensure all hires have this same passion and desire to achieve a better quality of life for our patient communities. Brittany leads the management of Bionews’ HR information system, onboarding and offboarding, company training, recruiting and hiring, benefits enrollment and works with the accounting team to coordinate payroll changes for Bionews.
Brittany lives in Cranston, Rhode Island, where she loves to explore hiking trails with her Cavalier King Charles spaniel, Bernie.

Shana Gray
Copy Chief
Shana Gray has served as copy chief with Bionews since March 2022. She previously worked for a number of newspapers in the Southeast, serving most recently as editor of six local news publications in Virginia. Shana started working at newspapers in high school and worked her way through college while serving at The Fayetteville (N.C.) Observer, in her hometown. She now resides in Hampton Roads, Virginia, where she enjoys reading in sight of the Chesapeake Bay and playing with her two pups, Roxie and Gus.

Michael Morale
Sr. Marketing Analytics Manager
Michael received his Bachelor of Science in business administration, with a major in management information systems in 1990, from the University of Texas at Dallas. In 2000, he received his MBA, with a major in management, from Amber University. In his working career, Michael worked for various companies, including ExxonMobil Corporation, where he was responsible for safety and ergonomics for the Dallas region. Along with working for ExxonMobil, Michael was an adjunct faculty member and college instructor for the Dallas County Community College District for 18 years. Due to his spinal muscular atrophy, he was forced to go on permanent disability in 2010.
Michael began working for Bionews Services as a YouTube developer and podcast specialist in June 2018. Currently, Michael is the Sr. Marketing Analytics Manager, and he’s collaborating with executive leadership and management to obtain, organize, and summarize relevant daily and monthly statistical data, so that he can report this information directly to the CEO and VP on a daily, weekly, and monthly basis. Michael ensures the tracking and reporting of key statistical data to ensure that upper management has the information they need in their decision-making process.

Jenn Powell
Brand Marketing Manager
Jenn Powell is the Bionews brand marketing manager. She lives in Southern California where she enjoys volunteering for animal rescue and spending time with her husband and golden retrievers. From her time at Bionews, Jenn has created content for and collaborated with multiple divisions of Bionews, including Bionews Insights and Bionews Clinical. Jenn is driven to elevate the needs of those in the rare disease communities. She has done so through her column, reading of news briefings, and hosting the recently launched MS News Podcast. Her patient perspective complements her passion and industry acumen for cultivating and engaging communities both within and outside of Bionews.

Jessica Barrale Cao
Director of Social Media
Jessica Barrale Cao joined the Bionews team as the Director of Social Media in 2023 and works from our headquarters in Downtown Pensacola, FL. A self-proclaimed idealist, Jessica believes in using her knowledge and skills to make a positive impact. She is proud to work with the diverse, mission-driven team at Bionews and to contribute to that mission by using social media to connect and empower members of the rare disease communities we serve.
Jessica holds a BA in marketing and an MA in strategic communication and leadership, both from the University of West Florida. She has worked in various marketing and communications roles with a variety of organizations including Special Olympics Florida, Emerald Coast Utilities Authority, and even an MGM Casino property in her hometown on the Mississippi Gulf Coast. She has also used her digital marketing and social media skills as an independent contractor in the health and wellness niche. Jessica is passionate about personal growth, health and wellness, and social and environmental causes.
In her free time, she enjoys listening to audiobooks and podcasts, practicing yoga, traveling, exploring nature, and spending time with friends and family, especially her two sons, Enzo and Roman.

Kevin Schaefer
Director Forums
Kevin graduated from North Carolina State University with a bachelor’s degree in English in 2016, and he is passionate about different forms of storytelling. He started at Bionews in 2017 as a columnist for SMA News Today, sharing his experiences as an adult with spinal muscular atrophy type 2. He eventually transitioned to a full-time role, helping build the company’s multimedia and forums divisions. As associate director of community content, he is responsible for supporting the director of community content in bridging the gap between our patient populations and our websites. He does this through building and maintaining patient and caregiver forums across Bionews’ disease sites. He oversees every step of the process, from hiring, training, and guiding forum moderators. His goal is to create engaging and supportive online communities for patients and caregivers to connect.

Patricia Silva
Senior Managing News Editor
Patricia holds a PhD in medical microbiology and infectious diseases from the Leiden University Medical Center in Leiden, Netherlands. She has studied applied biology at Universidade do Minho and was a postdoctoral research fellow at institute de Medical Moleculer in Lisbon, Portugal. Her role at Bionews has led her to build a team of PhD researchers who serve as science writers and editors, whose role is to ensure that the science and research that Bionews reports on daily is 100% accurate, while also written in a way that allows patients and caregivers to easily grasp the important details.

Josh Kramon
EVP of Commercial Partnerships
As the executive vice president of business development at Bionews, Josh Kramon leads all sales and business development initiatives. He comes to Bionews with more than 25 years of experience focused on the tech, data, and media side of life sciences. He’s managed business development teams at Doctor.com, Crossix, Vitals, and Healthline, and as an executive team member, led several of them to successful corporate acquisition.

Ashley Kaywood
Senior Vice President of Client Operations
Ashley joined Bionews in July 2022. Ashley is a passionate and experienced client services and revenue operations leader with more than 10 years of experience in the digital health space. She is laser-focused on creating operational efficiencies, providing customer-focused solutions, and the strategic growth of revenue and people. She has previously worked for Everyday Health, Medicx Health, and Adprime Health. Ashley is from New Haven, Connecticut, and resides in Jersey City, New Jersey, with her dog, Cooper, and cat, Olivia.

Jeff Lapointe
Executive Vice President of Technology
Jeff joined Bionews in 2022. Jeff has spent the last 20 years in digital health startups and patient advocacy as a founder and executive leader. He has built digital health platforms that have driven more than 1 billion healthcare consumers to make better cost and quality decisions by enabling healthcare transparency at scale. At Bionews, Jeff is leveraging his expertise in digital marketing and technology to enhance the digital user experience and drive site growth.

Matthew Lafleur
Director of Business Development and Patient Advocacy
Louisiana native Matthew Lafleur’s life isn’t what he expected following his 1994 diagnosis of Friedreich’s ataxia, a rare and debilitating disorder. Instead of giving up, he obtained degrees in English and mental health counseling. Unable to find a job after grad school, he applied to write a column at Friedreich’s Ataxia News. Years later, he now serves as the Associate Director of Patient Engagement for that site’s parent company, Bionews. Through his column and his role in patient engagement, Matt hopes to elevate the often overlooked voices of the rare disease population. We are not victims. We matter.

Alex Coletta
SVP Product and User Experience
Alex Coletta is the SVP of Product and Audience Development at Bionews. With more than 20 years of digital health experience, he’s created captivating digital products for both healthcare practitioners and patients, covering various disease areas including cardiovascular, diabetes and endocrinology, pain management, mental health, spine and musculoskeletal, HIV/AIDS, oncology, dermatology, and beyond. Alex also has played a pivotal role in deploying engaging products, including CME and course-based learning programs, condition-focused platforms, peer-to-peer HCP videos, branded and unbranded microsites, community-based tools, physician directories, point of care programs, virtual and in-person webinars and conferences, and more.
He has expertise in driving and nurturing repeat audiences among patients and HCPs, often catering to niche segments by utilizing both paid and organic traffic channels. He’s employed data-driven approaches and automation to help orchestrate large-scale email marketing efforts and has implemented SEO and E-E-A-T strategies at scale in the health space. Alex embraces emerging technologies, particularly those in AI content, image, and video generation, and often integrates new trends and tools into the healthcare landscape. He lives in northern New Jersey with his wife and two sons.

Ethan Ash
Executive Vice President of Business Development
Ethan joined Bionews in September 2022 following two decades in the health information and publishing space – where he was responsible for the launch, growth, and sale of Vertical Health to Remedy Health Media in 2019. After a few years working in business development at Remedy, Ethan joined Bionews to focus on content and community building around health conditions in need of a spotlight. Having a close family member with a rare disease only added to his interest in serving such an important and sometimes overlooked group. Ethan is a graduate of Cornell University in Ithaca, NY, where he lives with three boys (Rylan, Liam, and Eli) and his wife, Rachel, a mental health therapist. In addition to his work in the health information space, Ethan founded Ithaca’s Youth Entrepreneurship Market (www.YEMithaca.com), which helps young people develop an entrepreneurial mindset and gives them an opportunity to bring their ideas to life. Ethan was recently recognized as Ithaca’s Hometown Hero for his work with area youth as well as for his roles serving on several mission-driven boards and committees around the region

Ines Martins
Associate Director of Science Content
Inês holds a PhD in biomedical sciences from the University of Lisbon, Portugal, where she specialized in blood vessel biology, blood stem cells, and cancer. Before that, she studied cell and molecular biology and worked as a research fellow at multiple institutes. In addition to several college awards, Inês won the Pfizer Basic Research Award in 2012 for a research paper. She also has a graduate degree in data science.

Lauren Hannon
Senior Vice President of Strategy and Audience Growth
Lauren started at Bionews as a consultant. She resides in New Jersey with her husband and son. Lauren spent eight years working in the digital health space, leading client success and strategy teams. After a brief pause from work to spend quality time with her baby, she is excited to return. Lauren graduated from St. Joseph’s University on Long Island, New York, with a degree in business administration. During college, she worked part-time at a local hospital serving food to patients, which drove her passion for customer service in the health space. She reflects on how a smile and brief conversation with patients made a major impact on their entire day. Lauren admires the work Bionews is doing to serve the rare disease community and is thrilled to join a team whose work truly matters to patients and caregivers.

Alyssa Crawford
VP of Business Development
Alyssa Crawford is a VP of Business Development at Bionews and has been working in the media and digital advertising industry for 10 years, focusing on digital pharma and healthcare over the last 5 years. She is excited to be a part of the Bionews team and help the company grow by bridging the gap between pharma and patients/caregivers in the rare disease space. Alyssa graduated from Syracuse University with a Bachelor’s of Science in Public Relations back in 2015 and currently lives right outside the city of Philadelphia with her husband. She enjoys exploring different cities, trying new restaurants (especially Italian ones!), and loves to spend her summers at her family’s beach house in Wildwood Crest, NJ.

Erica Millman
SVP of Business Development
Originally from St. Louis, Erica made a bold move to the Big Apple after completing her undergraduate degree at the University of Missouri (Mizzou). With an unwavering passion for innovation in the digital advertising space, she has built a successful career in the digital health sector, where she focuses on improving patient outcomes and enhancing healthcare accessibility.
Erica furthered her expertise by earning an MBA, equipping her with valuable skills in strategic management and leadership. Throughout her career, she has been at the forefront of initiatives that leverage technology to transform the healthcare experience.
Erica lives in NYC with her husband, their son (Louis), and their Cavalier King Charles (Cooper).
Rare Leadership

Brianna Albers

Jamie Askari

Halsey Blocher

Jen Cueva

Brad Dell

Christie DuBois

Matt Lafleur

Jenn Powell

Kiersten Riggs

Kevin Schaefer

Alyssa Silva

Juliet Taylor

Brianna Albers
Column Lead, SMA News Today, Columnist
Brianna (she/her) is a crip cyborg storyteller living in Minneapolis-St. Paul. She was diagnosed with spinal muscular atrophy (SMA) type II at nine months of age and lives with co-occurring physical and mental health conditions. By day, she works as an advocate, bridging disability and mental health awareness to empower people to live their best lives; by night, she dabbles in imagination and is in the process of making the book of her heart, #WaningCrescent, the best it can be. Find her online at briannahopealbers.com and on social media @briehalbers.

Jamie Askari
Column Lead, Parkinson's News Today, Columnist
In addition to her work at Bionews, Jamie is also the managing director of Premier Health Advocates, LLC, a small medical advocacy organization in Cleveland, Ohio. Her husband Arman was diagnosed with Young Onset Parkinson’s disease in 2009, before his 40th birthday. Jamie and Arman have three grown children: Lexy, an attorney; Mandy, who is completing her MBA and dietetic internship; and Jake, an undergraduate student studying Finance and Accounting. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding PD and everything in their life. Jamie is thrilled to share her story with Bionews and Parkinson’s News Today!

Halsey Blocher
Columns Manager, SMA News Today, Columnist
Halsey lives with SMA type 1 and hopes to share a glimpse of life with SMA through her column, “From Where I Sit.” Halsey is an enthusiastic volunteer at Turnstone Center for Children and Adults with Disabilities, where she has also been a client since the age of three. Halsey enjoys exploring the city and wheelchair accessible walking trails with her family. Her hobbies include reading, art, cooking, and enjoying the sunshine!

Jen Cueva
Outreach Coordinator, Pulmonary Hypertension News, Columnist & Forum Moderator
Jen was diagnosed with pulmonary hypertension (PH) in 2005. Before PH, Jen worked In nursing, then the script changed. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone. In her column, she delves into the rollercoaster of emotions that come along with PH. Jen lives in southern California with her husband and mini-schnauzer, Together we PHight stronger.

Brad Dell
Senior Director of Commercial Programs, Head of Patient Advisory Board, & Cystic Fibrosis News Today Columnist
Brad redefines what it means to be “Victorius” (the name of his column), after a double-lung transplant recipient and being technically deaf. (He hears with the help of cochlear implants.) He tailors content and other projects to fit the needs of rare disease communities in his roles. Before Bionews, he worked as a copy editor, executive editor, and journalist for several culture and lifestyle magazines in Hawaii. He also serves as the pastor of a church in Honolulu.

Christie DuBois
Column Lead, Pulmonary Fibrosis News Today, Columnist
Christie is a lifelong explorer of the Wild West. After spending a decade roaming, she is finally back where she came from—living in Northern California with her dog, Tonka. Aside from being a columnist and column lead, Christie is a chef, poet, nature lover, and business owner. In 2019, she moved to San Francisco to care for her mother, Holly, before and after her double-lung transplant due to pulmonary fibrosis. Christie’s column documents the experience of her mother’s IPF progression, months-long hospitalization at UC San Francisco, and life-saving transplant. She hopes that her family’s transplant story can provide a unique perspective for other IPF patients and family members

Matt Lafleur
Director of Business Development & Community Engagement, Friedreich's Ataxia News, Columnist
Louisiana-born Matt Lafleur holds degrees in English and mental health counseling and built a work life rooted in empathy, authenticity, and human connection. Through his column “Little Victories” and engagement across patient communities, Matt strives to uplift those often overlooked in rare disease spaces. Above all, he strives to bring genuineness and shared humanity into every interaction—whether he’s writing, announcing milestones, organizing events, or connecting with business clients.

Jenn Powell
Associate Director of Outreach, Multiple Sclerosis News Today, Podcast Host
Jenn lives in Southern California where she enjoys volunteering for animal rescue and spending time with her husband and golden retrievers. From her time at Bionews, Jenn has created content for and collaborated with multiple divisions of Bionews, including Bionews Insights and Bionews Clinical. Jenn is driven to elevate the needs of those in the rare disease communities. She has done so through her column, reading of news briefings, and hosting the MS News Podcast. Her patient perspective complements her passion and industry acumen for cultivating and engaging communities both within and outside of Bionews.

Kiersten Riggs
Social Growth Manager
Kiersten is based in Tulsa, Oklahoma, where she has lived her whole life. She earned her bachelor’s degree in Marketing from Oklahoma State University in 2023. While in college, Kiersten became a social media influencer, aiming to spread positivity and make a difference in people’s lives through her online presence.
Since graduating, she has worked as a social media marketer for several companies. In addition to her professional work, Kiersten is passionate about raising awareness for rare and chronic diseases, including Friedreich’s ataxia, which she was diagnosed with at 16. Most of her conditions are invisible, and as a social media consultant, she advocates for greater awareness, acceptance, and accommodation for individuals with similar challenges.
In her downtime, Kiersten enjoys listening to country music, fishing, watching Netflix, and playing board games with her family and friends. She strives to balance her work and personal life while continuing to advocate for rare disease awareness through social media.

Kevin Schaefer
Community Editorial Manager, SMA News Today, Columnist
Kevin graduated from North Carolina State University in English and is passionate about different forms of storytelling. He started at Bionews in 2017, sharing his experiences as an adult with spinal muscular atrophy type 2. He eventually transitioned to a full-time role, helping build the company’s multimedia and forums divisions. In his current role, he helps bridge the gap between Bionews’ patient populations and its websites. He does this through building and maintaining patient and caregiver forums across Bionews’ disease sites. He oversees every step of the process, from hiring, training, and guiding forum moderators. His goal is to create engaging and supportive online communities for patients and caregivers to connect.

Alyssa Silva
Column Lead, SMA News Today, Columnist
Diagnosed at 5 months of age, Alyssa has set out to raise awareness about life with SMA type 1 through writing. By getting personal and being open about her trials and triumphs, she wants the world to know that SMA can put up a good fight, but we can always fight back remarkably harder. Aside from her role at Bionews, Alyssa is the community director for an adaptive fashion brand and has founded her own nonprofit called Working On Walking. In her free time, she enjoys discovering new coffee shops within a 50-mile radius of her hometown in Rhode Island.

Juliet Taylor
Outreach Associate, ALS News Today, Columnist
Juliet Taylor lost her husband, Jeff, to ALS in 2020, 19 months after his diagnosis. Together, Jeff and Juliet enjoyed being on the water, live music, pets, and traveling. She was his primary caregiver and finds meaning and healing in helping individuals and families who are living with or have lost a loved one to ALS. Juliet lives with her rescue pup, Sailor, on the eastern shore of Maryland, in a home that Jeff chose because it reminded him of his beloved Green Lake in Michigan.
Strategic advisory board
The Bionews Advisory Board members bring a wealth of experience from across the healthcare spectrum: pharmaceutical development, digital media, strategic planning, and more. We are proud to bring together this group of experts, all dedicated to improving patient health by supporting Bionews’ mission.
Courtney Cruz
Senior Director, Integrated Media Strategy – Specialty Care, Pfizer
Christopher French
Founder, Westwood Advisory
David Kopp
Board Director and Advisor, Former CEO, Healthline
Kimberly Moran
Senior Vice President and Head, Rare Diseases US, UCB
Bill Paquin
Chief Commercial Officer, Prognos Health