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Community-Powered Awareness Takes Center Stage: Bionews at WODC 2025

by Bionews Staff | May 7, 2025 | Press Releases

Bionews wrapped up an energizing week at the World Orphan Drug Congress 2025 in Boston, where we had the opportunity to share the evolution of how we engage rare disease communities online.  The presentation, led by Marcella Debidda, PhD, and Ethan Ash, senior VP of...

Engaging the Rare Disease Patient Online: Bionews Presents at World Orphan Drug Congress 2025

by Bionews Staff | Mar 21, 2025 | Press Releases

Bionews is excited to announce our participation in the World Orphan Drug Congress 2025. This year’s presentation delves into innovative strategies to engage rare disease patients online by exploring practical approaches to reaching these communities, delivering...
Bionews Launches Immersive Patient Journeys for Rare Disease Community

Bionews Launches Immersive Patient Journeys for Rare Disease Community

by Jennifer Powell | Aug 19, 2024 | Press Releases

PENSACOLA, Florida  – August 19, 2024  — For millions of people living with rare diseases, every day can bring challenges with isolation and uncertainty. Bionews, a leading digital health solutions company dedicated to empowering the rare disease community, is proud...

Bionews Rare Disease Patient Journey: Insights from Largest US Survey Exposes Gaps and Opportunities for Improved Care

by Jennifer Powell | Jun 4, 2024 | Press Releases

Bionews Launches Much-Needed Resources for Patients with Rare Disease to Close Resource Gap in this Patient Population PENSACOLA, Fla., May 30, 2024 – – Bionews, Inc., a leading voice in the rare disease community, unveils valuable findings from the...

Bionews Evolves Brand Identity with Bold New Look, Same Powerful Voice for Rare Disease Communities

by Jennifer Powell | Jun 4, 2024 | Press Releases

Bionews, the nation’s largest and most trusted network of rare disease communities, today unveiled a new brand identity reflecting its ongoing commitment to supporting patients and fostering meaningful connections. Our brand refresh goes beyond aesthetics; it embodies...

Mayo Clinic PaSAGE Study Team and BioNews Collaborates to Advance Rare Disease Awareness

by Bionews Staff | May 29, 2024 | Press Releases

The Mayo Clinic PaSAGE Study Team has announced a collaboration with BioNews to inform the future of rare disease care. This collaboration aims to understand the potential impacts of genetic therapies on patient communities and advocate for the creation and...
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