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Rare disease patients are adopting AI faster than they are trusting it, Bionews Q1 Index shows

by Jennifer O'Reilly Mott | Apr 30, 2026 | Press Releases

The most intense distrust is softening. The breadth of skepticism has not changed. PENSACOLA, Fla., April 23, 2026: Bionews today released the Q1 2026 Rare Trust in AI Index, the second quarterly wave of its proprietary index tracking how rare disease patients...

New Research Reveals Loneliness, Not Disease Duration, Is the Strongest Predictor of Mental Health Distress in Myasthenia Gravis

by Jennifer O'Reilly Mott | Mar 2, 2026 | Press Releases

A survey of 311 people living with MG finds that three emotions explain 63% of all variation in mental health outcomes, challenging how we think about rare disease care PENSACOLA, Fla., Mar. 2, 2026 — New research published by Bionews, Inc. is changing the...

Bionews Releases Inaugural Rare Trust in AI Index, Finds Low Confidence in AI-Generated Health Information Among Rare Disease Patients

by Bionews Staff | Dec 9, 2025 | Press Releases

With an initial index score of –0.87, the report highlights both the trust gap and the emerging opportunities for AI to support patients more effectively. PENSACOLA, Fla., Dec. 10, 2025  — Bionews, a leading rare disease news and community network, today announced the...

Community-Powered Awareness Takes Center Stage: Bionews at WODC 2025

by Bionews Staff | May 7, 2025 | Press Releases

Bionews wrapped up an energizing week at the World Orphan Drug Congress 2025 in Boston, where we had the opportunity to share the evolution of how we engage rare disease communities online.  The presentation, led by Marcella Debidda, PhD, and Ethan Ash, senior VP of...

Engaging the Rare Disease Patient Online: Bionews Presents at World Orphan Drug Congress 2025

by Bionews Staff | Mar 21, 2025 | Press Releases

Bionews is excited to announce our participation in the World Orphan Drug Congress 2025. This year’s presentation delves into innovative strategies to engage rare disease patients online by exploring practical approaches to reaching these communities, delivering...
Bionews Launches Immersive Patient Journeys for Rare Disease Community

Bionews Launches Immersive Patient Journeys for Rare Disease Community

by Jennifer Powell | Aug 19, 2024 | Press Releases

PENSACOLA, Florida  – August 19, 2024  — For millions of people living with rare diseases, every day can bring challenges with isolation and uncertainty. Bionews, a leading digital health solutions company dedicated to empowering the rare disease community, is proud...
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