Bionews Community Scholarship

URL

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Grant/Scholarship Details

Thank you for sharing your story with us. This form is used to collect submissions for the Bionews Rare Disease Community Scholarship. Please share only information you are comfortable providing and do not include full medical records, provider names, or other highly sensitive personal health details.

Submissions will be reviewed confidentially by a limited scholarship committee and stored securely in accordance with our privacy policy .

Eligibility

Must be 18 years or older
Must be a U.S. resident
Must be a person living with a rare disease or caregiver
Finalists will be invited to a short video conversation with a Bionews team member

Deadline

Submissions must be submitted by March 6, 2026.

Email(Required)

First name(Required)

Last name(Required)

Are you 18 years or older?(Required)

Yes

Are you located in the United States?(Required)

Yes

Which best describes your role in the rare disease community?(Required)

Person living with a rare disease

Caregiver for someone living with a rare disease

Which rare disease are you or a person in your care living with?(Required)

If your rare disease is not on this list, please enter below.

Rare Disease

Your Story(Required)

Share your personal journey living with or supporting someone with a rare disease. What challenges have you overcome? What lessons have you learned? Please share only information you are comfortable providing and avoid including highly sensitive personal medical details.

Advocacy in Action(Required)

Tell us about a moment when you advocated for yourself or others in the rare disease community. How would attending an event help you amplify that impact? Please share only information you are comfortable providing and avoid including highly sensitive personal medical details.

Please list a few potential events you would want to join!

It is fine if you are unsure; we can help guide your options with one of our advocacy partners.

Consent to Participate(Required)

I understand that this submission is being collected for the purpose of evaluating applications for the Rare Disease Grant and consent to Bionews collecting and reviewing my information for this purpose.

Yes, I acknowledge and agree to the notice above

Privacy & Data Use Notice(Required)

The information you provide will be used solely to evaluate your scholarship submission and administer the Rare Disease Grant. Your submission will be stored securely until the submissions have been finalized in March 2026 and accessed only by authorized reviewers. Bionews will not sell or share your personal information with third parties outside of the scholarship review process. Link to privacy policy: https://bionews.com/privacy-policy/

Yes, I acknowledge and agree to the notice above

Email Consent

I would like to receive newsletters from Bionews related to the rare disease community I selected above. These emails may include updates, educational content, and occasional surveys and partner emails. I understand I can unsubscribe at any time.

Yes, I acknowledge and agree to the notice above