by Bionews Staff | Dec 9, 2025 | Press Releases
With an initial index score of –0.87, the report highlights both the trust gap and the emerging opportunities for AI to support patients more effectively. PENSACOLA, Fla., Dec. 10, 2025 — Bionews, a leading rare disease news and community network, today announced the...
by Bionews Staff | May 7, 2025 | Press Releases
Bionews wrapped up an energizing week at the World Orphan Drug Congress 2025 in Boston, where we had the opportunity to share the evolution of how we engage rare disease communities online. The presentation, led by Marcella Debidda, PhD, and Ethan Ash, senior VP of...
by Bionews Staff | Mar 21, 2025 | Press Releases
Bionews is excited to announce our participation in the World Orphan Drug Congress 2025. This year’s presentation delves into innovative strategies to engage rare disease patients online by exploring practical approaches to reaching these communities, delivering...
by Bionews Staff | May 29, 2024 | Press Releases
The Mayo Clinic PaSAGE Study Team has announced a collaboration with BioNews to inform the future of rare disease care. This collaboration aims to understand the potential impacts of genetic therapies on patient communities and advocate for the creation and...
by Bionews Staff | Mar 20, 2024 | Press Releases
The session will highlight how Bionews’ large reach and access among rare disease patients, combined with strong community activation expertise and a patient-centric approach, accelerates trial recruitment programs. During the presentation, Bionews also will share key...
